Northeast Cochlear Implant Convention 2009

I will be attending the Northeast Cochlear Implant Convention 2009 on July 10 - 12, 2009 at the Sturbridge Host Hotel & Conference Center in Sturbridge, MA where none other Josh Swiller who is not only pretty easy on the eyes but the author of “The Unheard: A Memoir of Deafness and Africa.”, will be the keynote speaker.

You can take a look at the 2007 convention pictures here. I have to say from looking at the pictures, this looks like it is going to be a fun group! Children, adults and workshops - oh my!

So what is this convention about, check out this snippet below.

Dear Families and Friends,

You are warmly invited to attend the Seventh Biennial Northeast Cochlear Implant Convention, to he held July 10-12, 2009 at the Sturbridge Host Hotel in Sturbridge, MA. On-line registration or registration forms will soon be available on this site. Call 1-800-582-3232 to reserve your room at the hotel, or on-line at www.sturbridgehosthotel.com.

Nearly twelve years have passed since our first convention in Sturbridge, in 1997. In some ways, the convention is like a school reunion. Lounging around the pool or at a party in a guest room, we catch up with our friends’ changing lives: new jobs, or maybe retirement; children progressing through elementary, middle and high school, and on to college. And incidentally, how are you or your child doing with the implant? How nice to hear that things are going well!

The theme of the ’09 convention is “We Hear the World.” It is a natural evolution from the previous convention themes of “Raising the Bar,” “Enhancing Communication,” and “Technology Rocks!” In “Raising the Bar” we considered the new higher standards for classroom acoustics, the rising performance levels of cochlear implants and assistive listening devices. The theme “Enhancing Communication” reflected the many new technologies and approaches for facilitating communication access by adults and children in a wide range of situations. “Technology Rocks!” addressed the many exciting technologies and approaches that can unlock communication potential and make possible more complete and satisfying human communication in school, at work, in social settings with friends, and at home..

“We Hear the World” celebrates the many examples of cochlear implant users participating fully and independently in the world around them. The keynote speaker at our upcoming convention, Josh Swiller, will offer some thoughtful and humorous insights about hearing the world and being a part of the world. Josh spent two years living in a rural village in Zambia. That experience is recounted in his book, “The Unheard: A Memoir of Deafness and Africa.” Josh has had a “ large variety of careers, including forest ranger in the California Redwoods, sheepskin slipper craftsman and salesman, Zen monk, raw food chef, journalist, and teacher. The title of Josh’s keynote address is “We Are the World.”

Hearing the world also implies that we listen with empathy and respond to needs that we learn about. Like everyone else, cochlear implant users experience passages in their lives. High school students leave home for college. College students enter the workforce. The generation born after WWII leaves the workforce for retirement, and many of those who received the earliest implants are now golden agers. New technologies and communication approaches can ease the transition to a more mature stage of life. At the convention we will explore these transitions to the next arena of life.

See you there!

Larry Orloff, Chairperson, President, MIC and Marilyn W. Neault, Ph.D., Co-Chairperson, Children’s Hospital Boston

So go ahead and download the registration forms here and I hope to see you there!

Three men and their articles.

Michael Chorost, author of "Rebuilt" released his latest article today for Technology Review called Helping the Deaf Hear Music. I found this very interesting because it discusses a computerized test that measures how well cochlear implant users perceive music.






Josh Swiller, author of "The Unheard: A Memoir of Deafness and Africa" had an article released today as well in the New York Times about him, Cochlear Implant Supports an Author’s Active Life. He discusses how his cochlear implant has changed his life.





Michael Royer, a fellow Advanced Bionic cochlear implant user AND he is on the cover of the next March/April edition of the Hearing Loss Magazine. According to the HLAA's website, it will feature his article called Buried Treasures which is "a personal story about growing up with a hearing loss and finally getting a cochlear implant."

Greatest Moment of the Year.

In my silent past, I have been surrounded by people who can hear water dripping, dogs whining, and bacon cooking without a second thought. My sad reality of it all came to full fruition that no one in my repertoire of acquaintances is able to understand that to me, those sounds just simply did not exist. I felt like I was the lone poodle watching the world absorb sounds while I was pathologically incapable of doing so. I can’t tell you how I longed to talk to someone that knows what it is like to wake up to the sun, lay down to the moon and all the minutes in between missing what we miss. For a deaf chick that has a habit of running her mouth has grown up in what some people have called the “hearing world,” I never found a hearing person who could relate to me and my quirky ways of getting through the day. I have been called weird countless of times and I acknowledge that since I eat pizza with a fork, put potato chips on my hoagies, and I swallow gum. Ironically, I have almost NO experience with the “deaf world” and what little experience I did have I was shunned. When deaf people can talk, there seems to be a common theme that people like me are deaf to the “hearing world,” and hearing to the “deaf world.” Where do we fit in? We don’t. Personally, I feel that there is no such a thing as a “hearing world” and a “deaf world” because it implies that the world is divided by a common denominator, which is a contradiction unto itself. Last time I checked, we all walk on the same terra firma, witness the same solar rotation, and feel the same splash of rain on our face. I don’t define the world I live in as a white or black world, or a Christian or Jewish world, or a Wal-Mart or Target world, so why would I lend to reason that a hearing and deaf world exist? I feel the world is my oyster and I intend to crack it open. I just needed to meet other people that have cracked theirs and I did just that. On November 26, 2007, I entered a classroom surrounded by familiar lily-white walls with one purpose to meet Michael Chorost and Josh Swiller who conducted a reading of their respective books, Rebuilt and The Unheard: A Memoir of Deafness and Africa.

As I was waiting patiently for the date of my cochlear implant surgery, I picked up Rebuilt and could not put it down. His book was populated with such witty descriptions and technical aspirations about deafness that truly made it a pleasure to read. He offered motivational support and in a sense virtually patted me on the head to be patient. On December 17, he underwent another successful surgery to receive a second cochlear implant after Let Them Hear Foundation persuaded Aetna to revise their policy to include bilateral cochlear implantation. It was a long fight for him to get the chance to run on dual processors. I can only envision that his next book will be revolutionizing the viewpoint on bilateral implantation.

When Michael started the reading, he clearly demonstrated the host in himself. His ease and elocution with public speaking is astounding. As he guided the audience through the moment that he suddenly lost his hearing, his tone acquired a sense of ardent staidness. At first, he thought it was the battery because when that goes, you immediately feel disconnected, but usually another battery will fix you right up. A proper metaphor is radio playing a song and it abruptly stops. In Michael case, no battery in the world seemed to work, neither one of his aids worked, and finally neither one of his ears worked. He was stripped of what precious hearing he had in a matter of hours. I can relate to this dreadful moment as I went in an operating room hearing fine, woke up hearing nothing but my own heart beat that started a flood of rampant emotions that he captured flawlessly in his book. I was thoroughly impressed by the fact he can hear questions and respond to them, one by one, without hesitation his answers flowed in a dignified manner. It is one thing to see words forged one character at a time bound in a book but when there was a time I thought I would never hear anyone speak again, it was truly a memorable experience to be hearing him that day.

Allow me to introduce Josh Swiller, a native New Yorker who has been deaf since he was four. He is barely over thirty and already has a glossary of accomplishments and prodigious experiences. He attended an Ivy League college and went to Gallaudet University where he learned sign language, but he felt lost no matter where he was. He has no shortage of experience in the world because he has been a carpenter, a salesman, a journalist obviously, a Zen monk, a raw food chef, a teacher, a forest ranger and last but not the least, a volunteer of the Peace Corps. I must point out that it is pronounced COR like the beer, apparently, the ps are silent. The Peace Corps shipped him off to Africa with a two-year supply of hearing aid batteries to teach a village located in Zambia how to dig wells. His book has no shortage of feverishly gripping details of the state of deprivation that Zambians accept as their every day life. I was mentally teleported me to a foreign land of fervent heat, impoverishment and rampant diseases but in the end, He found a nook that became his oasis where deafness did not matter.

Until that night, I have never spoken to him but Josh began his reading by cracking a few jokes, which was the appetizer of his jovial personality. He comes from a large family where he and another brother were deaf. He injected knee-slapping banters about growing up with five brothers all throughout the reading. The more he talked, the more I could see that his candor is completely uninhibited, what you see is what you get. Just like his book, Josh articulately guided us on a compelling journey of courage, friendship and most of all self-discovery. The first word that comes to mind is brave. He embodied courage in every sense of the word. To be willing to have your passport stamped to penury in Africa is bold but I understand the need to seek a much simpler way of life. To be deaf and willing to sacrifice a language that you have always known for a new dialect from scratch, in my mind is a daunting task. I cannot understand English half the time and accents are my ultimate adversary, except for a suave Latin man. For him this turned out to be a blessing. To face what he faced, to hear what he heard, to share what he shared is truly inspiring. In the most remote location of Africa, he finally felt at home.

To be able to someone talk to someone who understands this silent path with all the trials and tribulations that life throws at us was the greatest moment I experienced this year.

Gentleman, for that I thank you.