Cochlear Implant Anniversary

I can’t believe a year ago I was sitting Indian style in a paper thin cotton gown surrounded by the ugliest drapes I ever set eyes on observing nurses in colorful scrubs decorated with the sweetest little creatures pushing metal carts from patient to patient.

I can’t believe just a year ago I was listening to a train like sound going around and around my head providing me with an undesirable melody that just wasn’t quitting.

I can’t believe that one year ago today, I underwent surgery to have a cochlear implant inserted just underneath the skin of my head.

Ever since that day, my life has changed in ways that I never thought. I feel so enriched by the people I have met, the sounds I have heard and the experience of discovering what I have been missing all of these years.

Happy implant anniversary to me!

Hearing the Ocean for the First Time

Later that evening, Jen and I went to Point Pleasant Beach. I grew up with some strong nautical family ties to the ocean. I grew up with the beach at my doorstep. When I lost my hearing in February of 2007, I was still hoping that my hearing was going to come back any day. I realized that it wasn’t after I went on a vacation with a couple friends to Myrtle Beach a few weeks after my nose job. We were only about a block away from the ocean and all of us went down to go for a run on the beach. After spending twelve hours in the back seat of a car barely being unable to communicate with anyone in the front seat, I was looking forward to being on familiar grounds. After climbing a very large sand dune, I saw the great Atlantic Ocean and then I lost sensation in my knees. The warmth of sun was there, the sand diffused underneath my feet and the distinct smell of the salty air permeating my nose just like old times but there was something missing. The ocean ambiance was – dead. I couldn’t hear the waves crashing five feet way from me. The seagulls soared right over top of me and I couldn’t hear them utter a sound. The passersby on their morning stroll stopping to wish us well. I was living a silent movie. The wind kept blowing several strands of hair in my face and I thought with my hearing aids, all I would have heard is the wind whipping around. I just pulled my sunglasses over my eyes and cried while I was running. I decided the second I got back that I was going to make an appointment for a cochlear implant evaluation. I tried to make the best of my vacation by trying to find my hearing in the bottom of a bottle.

Jen and I were on a mission because neither one of us had heard the ocean since our cochlear implants have been activated. I thought it would be a great experience since she is a few hundred miles away from the seashore. I have been hesitant on going to the ocean because part of me thought I might have disappointed in the way it sounded. I couldn’t think of a better person then Jennifer to share this listening experience with. If it were anyone else, I would be willing to bet I would have heard nothing but nagging but this was our moment.

But there we stood, side by side with the full moon illuminating the night sky with the eastern seaboard 10 feet away from us. We tossed our sandals and let our toes sink into the wet sand and we listened. We listened to the seagulls cussing the ocean wind with their calls, the rising roar of the ascending tide and the crashing of the waves, the trickle of water being pulled back into the sea and the gentle drone of foghorns in the midst of the ocean. We stood there just listening to the ocean ambiance discovering how it sounds all over again. It used to sound so harsh with the wind swirling and waves crashing wearing hearing aids, but I realized that a majority of my infatuation with the sea were visual. After 28 years and one cochlear implant, I finally heard the rhythm of the ocean.


The next day, I wanted to take Jen by my job because when I go out on break, I walk passed these trees and I keep hearing this high-pitched sound that mask everything else out. It is driving me bonkers! I keep asking my hearing friend keeps telling me that it is bugs or tree frogs. Somehow, I am not satisfied with that answer. I wanted to see if Jen could pick the sound up with her cochlear implant. They weren't chatty this weekend. Jen even tried to coerce them to talk but wouldn’t you know the darn frogs were off for the weekend?

*UPDATE* They are Cicada Bugs!


After Jen shooting me some strange looks, I pouted because I want my audiologist to map out these friggen frogs. Anyway, I thought we would continue with the nautical theme. I decided to take Jen to the Barnegat Lighthouse whom my great uncle was the lighthouse keeper in 1915 to 1926.


I have been up and down this lighthouse several times, but I felt as they added more steps. I was tuckered out by the time I climbed back down. I had no idea how my great uncle climbed seven gallons of oil up and down those steps every single day. God bless that man.



Then we headed down towards the jetty rocks and admired the boats rocking in the water. We hit up a Sonic restaurant and I got this Route 44 Diet Cherry Limeade and that was very delish. We were so exhausted by the end of the day that coffee didn’t do a darn thing for us.



We just came back home and slapped our laptops on our thighs and typed away until we passed out.

The next morning, it was time for Jen to go back to Tennessee. I didn’t want her to go because we were having so much fun together. I purposely had thought of getting lost so she could miss her flight, but I opted for driving extra slow. I miss her already! But, I wouldn’t trade in the experience of being with her who is someone that can understand where I am coming from in all aspects is unbelievably refreshing. She is a special lady that always has a place in my heart.

My bionic belle comes to vist!

Every hour of this past weekend felt happy hour because my wonderful friend, CI mentor, fellow blogger and mother of five adorable kiddies Jennifer flew in from Tennessee and stayed the weekend with me! When we met in Reno for the first time, it didn’t feel like it was the first time we met. We clicked, we really clicked. The fun does not falter between us. The thought of waiting one whole year for the next hearing loss convention to see each other again did not appeal to the likes of us. Quite frankly, neither one of us are that patient so we moved it up a bit :)

Friday night, I slipped behind the wheel of my new white Toyota Prius that I have nicknamed the Incredible Eco-Egg, to trek across the Garden State into the city of brotherly love to pick up the fair southern bionic belle. I still get a surge of excitement every time I get behind the wheel because the feeling of being green has a cheaper price tag attached since I am now getting fifty miles to the gallon. That’s right, fifty, 5-0, five dash zero, 50 miles to the gallon :) But, I was ten times more excited that I was going to pick her up and submerge her in the New Jersey finger flippin’ culture for the weekend.

We had timed the flight perfectly because as soon as she got her luggage, I pulled up and we started flapping our jaws. I felt as we picked up right where we left off in Reno - minus the interesting fan club. We had some time to kill before we met up with Wayne Roorda, who is another AB user and his very lovely wife Lili for dinner. Since I am the native, I felt it was my duty to give her a little scenic tour. I picked a part of South Philly that was just a little too urban for our countrified doll. I was watching her facial expression change as our surroundings went from social suburbia where all the houses were decorated with shiny new siding and plantation blinds with to poorly painted row houses with the cheapest bed sheets hanging in the windows littered with cigarette burns haphazardly filtering the afternoon sunlight. I forged ahead down the one way street past the barren school yard. I drove through the underpass where a rusted shopping cart was missing a wheel supported the cardboard structure. When a gloomy site passes by your eyes, it goes in slow motion because it is sad when you realize that is going to be someone’s home tonight. I come to a stop sign, glanced over to the left, and notice a thick young girl covered in tattoos that look as if she were going mullet hunting. All Jennifer kept saying was, “We don’t have things like this back in Nashville.” I bet she didn’t. My gas gauge started emitting a beep and flashing. It was letting me know that I needed to get gas now. I took it as a sign and got the heck out of the ghetto. Women's intuition and all that jazz...

Shortly afterwards, we met up with Wayne and his teeny tiny wife of 30 years at a Mandarin Restaurant in Cherry Hill. I hadn’t seen Wayne since Reno and it was such a pleasure to see him again. This was my first time meeting his wife who just a doll. Jennifer had an itching to try something new and it included tentacles. She decided to try an itty bitty octopus with doctored up with habanero peppers. She cautiously placed the octopus in her mouth; eight limbs and all and then proceeded to chew.


And chew.

And chewed some more.

I went to get my second helping.

Came back and she was still chewing…

Once her incisors managed to macerate the poor thing, she offered to share her second one with me. I toyed with the idea of going on a chewing marathon to burn some extra calories but after pushing it around on the plate...



I politely declined. We ate enough to feed a small army and began to wobble our way out of the door but not before I plowed through four different fortune cookies until I found a one that I was satisfied with :)

After finding the perfect fortune, we took some pictures as you can see here! Wayne and Lili, thank you for dinner, I had a very lovely time and we must do it again!



After dinner, I loaded the Incredible Eco-Egg with Jen and myself and we began the trek back home. I made Jen count how many diners there were along the way. I think she lost count. We managed to get home at a decent time and we just chatted with my mom. I introduced her to the flying fur ball otherwise known as Bella. She took a liking to the southern belle. :) Surprisingly, we closed our eyes at a decent hour…

The next morning, I presented to Jen a cup of coffee big enough to go fishing in. I think my mother’s special blend got her motor running in no time at all. We put our batteries in and got a move on to face the day. I introduced her to one of our shiny aluminum sided diners where everything is cooked from scratch and served on 20” plates. We ordered some French toast, which was more like half a loaf of bread sliced three times. We wobbled out of the diner, quite literally.



I had made tentative plans with Sam Spritzer a few weeks ago to meet and through some trials and tribulations, we managed to meet up on Saturday afternoon at a nearby mall! My first impression was that someone drank his milk when he was younger because I was prepared for his vibrant personality but I was not prepared for his height. I think I got a crick in my neck straining to look up at Jen and Sam :) Since Sam has bilateral cochlear implants, we decided for acoustic purposes to stick him in the middle. I stood on the right side so I could my implant on my left ear would catch whatever Jen and Sam said. Jen stood on the left side so her implant on her right ear would catch Sam and I would have said. It is so much simpler when I am around other cochlear implant users because they are aware of how to maximize the listening experience. If I were to frantically shuffle around anyone else, I get a questionable look. With everyone properly positioned, we walked around the mall and chatting about anything and everything. Not that I am short, I am more fun size then anything but I had to keep looking up at their lips and I couldn’t very well watch where I was going. I kept walking into tables and the like. I thought for my own personal safety that they should sit down. :)


I had such a great time with the two of them just shooting the breeze with Jen and Sam. I am looking forward to seeing him at the Nashville HLAA convention next June!

Part 2 up next :)

Kim, Robyn, Tina and Clifford the Big Red Dog...

A couple weeks ago, I ran over to the Say What convention that was being held in Philadelphia, the city of brotherly love to meet Kim from Living With Questions, Robyn from The Ambling Rambler and Tina Childress, an audiologist with Advanced Bionics and a bilateral cochlear implant recipient. Kim and I were texting the day before we were going to meet and the last text before I fell asleep was that she wanted to go get another apple dumping. As I shuffled my feet towards the bedroom, I was staring at the screen of my blackberry, wondering the hell was an apple dumping. I made an executive decision to sleep on it.

The next morning, I was still just as puzzled about the apple dumping. I decided to ask my mom who is popular in the family for being a sponge of useless knowledge. I figure if anyone would know it would be she. Much to my surprise, she had no idea. With very limited knowledge of apple dumping, I forged ahead to Philadelphia.

Once I arrived at the hotel, I sent a text to Kim to let her know that I was standing guard at the door. :) A few moments later, Kim came out with open arms and a beautiful smile. We gave each other a big bone crushing hug. Her personality and cherubic giggle endeared her to me. We chatted back and forth until Robyn materialized next to us. The fair skinned Robyn came all the way from New Zealand for a month long vacation or holiday as she calls it. Since she came from abroad, she came with an accent, one that I never encountered before. I wasn't too worried, but I was surprised at how soft spoken she was but what really threw me for a loop was the lack of the enunciation of the R's. Apparently, New Zealanders does not pronounce their R's as we do here. Here is a sample conversation that we had.

Robyn: "....I'll meet you at the bah."
Kim : "The what?"
I thought she said back?
Robyn: "The baaah."
Kim and I focused on her lips.
Robyn: "The baaaaahr."

Ah hah, we figured it out. She said bar. :) Amazing how the subtle nuances of a language can present a wee bit of a challenge. :)

And off to the bar we went, which was more like a casual dining establishment. You didn't really think that we were going to throw a few back at eleven in the morning, did ya? We sat and chit chatted for a bit. Robyn joined us with moments to spare since she had brought tickets to go on a tour in the Museum of Art that was leaving shortly. I wasn't going to let her get away without posing for a couple pictures that was shot beautifully by Kim's friend, Lorne. Before she left, we made plans to meet up later on in the evening to spend a little more time together.

Shortly after Robyn left, Tina had arrived at once! We decided that lunch was a matter of utter importance. That is when Kim brought up the infamous apple dumping. This was my opening to make an inquiry to clarify the apple dumping. Kim enunciated her lips as she said, apple DUMPLING. I started to laugh as I told Tina and Kim that this entire time, I read her text as apple dumping. Tina started cracking up and made the most fitting comment, "Not only are you hearing impaired, you are visually impaired (brief pause) cognitively impaired." I was inclined to agree with everything she said! I whipped my blackberry out of my pocket and hunted down the text that Kim left to reread it and sure enough, it said apple dumpling.

However, I was right back to where I started, clueless. I asked Kim what was an apple dumpling. With signs of exuberance in her eyes, she told me that it was an apple baked in a pastry crust, drizzled with a cinnamon sugar sauce and it was served with ice cream or cream. After I gained five pounds just listening to her, I decided that we better get a move on to find the purple trolley otherwise known as the Phlash to go over to Reading Terminal Market. Armed with my handheld GPS (I have an innate fear of getting lost.)

We had no problem getting on the Phlash trolley. By the time, we got off the trolley I had visions of a cheesesteaks from Rick's Philly Steak, dancing in my head. I manage to get the cheesesteaks dancing in Tina's head. We had a bit of trouble finding Reading Terminal Market but my GPS got us there. Unbeknownst to us, it was the Ice Cream Festival that weekend there. It was a shame but my GPS couldn't find Rick's because we were nearly to slip into a diabetic coma if we didn't get a cheesesteak stat. We sacrificed by running to the first cheesesteak booth we saw. We managed to find a nice table in the back, away from most of the noise, which was very helpful for the lot of us.

After a wonderful lunch with the gals, we headed over to this little Amish booth to test drive an apple dumpling.. It was oh-so-delish. After the dumpling went down the hatch, Kim and I decided to head towards the loo for some bladder relief. Tina decided to gather some sweet stuff from the candy store. Right before I walked into the bathroom, out of the corner of my eye, I caught a glance of this fuzzy red dog as big as a house playing with some kids.



I couldn't remember the name of the dog, I thought it was Spot but I was wrong. I thought how cool would it be if we all got a picture with the big red dog. Sooooo, while I was standing in line waiting for the next available stall, I sent a text to Tina, obviously not even thinking on how peculiar it must have sounded to her.

At the most, four minutes have elapsed since I saw the six-foot fuzzy red dog. Once we finished doing our lady things, we started walking out and I'm talking about this big red dog and Tina and Kim are looking at me as if my magnet were on too tight. Tina asked me whether I read her reply to my text, which I didn't. I'm trying to dig my blackberry from the deep depths of the rabbit hole otherwise known as my purse while I was leading the pack out of the bathroom in search of the big red dog, but there was no big red dog in sight.

I glanced over my shoulder at Tina and Kim and their face said it all, I was obviously elected as the queen of the monkey people. Mind you, I am dead serious about seeing this six-foot fuzzy red dog. Without missing a beat, I stop some woman walking by and ask her point blank, "Have you seen a big red dog in here?" As Tina started laughing out loud, the woman clutched her purse to her side, took a couple steps back and exhibited some signs of uncomfortableness as she said, "No." I could clearly see that I weirded her out. I thanked her for her time and went to the spot where I last saw the dog, hoping to see some red fuzz from the costume to prove that there was a six-foot fuzzy red dog standing there. Much to my dismay, there was no red fuzz anywhere. I had the nerve to stand there and think to myself how strange that was because dogs always shed. :)

I finally pulled my blackberry out of my purse but I just clutched it in my hands because I had important matters to attend to, like track down a six-foot fuzzy red dog. Tina asked me whether I saw any pink elephants flying around too. Now I am just finding this whole situation just plain funny because this is such a classic situation that I get myself into, I see something that no one else does and as usual, I end up looking like the leader of the village idiots. However, it became a matter of principle that I had to find this six-foot fuzzy red dog. I decided to ask a man this time. I scouted the area for a man that looked as though he was hanging around in the area for the past five minutes and I found one, right by the loo with his arms crossed. It looked to me that he might be waiting for his wife. So, I walked right up to him and asked if he saw the big red dog anywhere and he said nope. Things were not looking good if I had to go to court and prove that I was sane.

I finally open up Tina's reply to my text and it said, "Wtf?" My thoughts exactly, wtf is this dog!? I thought the reply was appropriate and I'm glad I didn't open it up earlier because it wouldn't have packed quite the same punch. The gals appeased my insane curiosity by looking up and down the aisles for this dog but no avail, there was no six-foot fuzzy red dog anywhere. Did it run away to the nearest fire hydrant or something? The six-foot fuzzy red dog didn't have a name until Tina mentioned the name Clifford the big red dog. She's a mom; it’s her job to know the name of popular children books. :) What do I know? I'm pushing 30 here, the last time I was a kid was... and lets not get into that.

Anyhoo, I didn't know what else to do, pass out flyers for a missing six-foot fuzzy red dog or walking around shouting CLIFFORD hoping he would come when he was called. We started walking towards the exit of the market when I had to ask one more person. It was just a matter of principle. I asked a woman that was a spitting image of Aunt Jemima if SHE had seen the six-foot fuzzy red dog. She said that she has in fact seen Clifford the big red dog and pointed towards the back, right where I spotted the damn dog in the first place! I lunged with such excitement at the girls and let out a "Ah hah! Did you hear that?! Aunt Jemima over there said Clifford the big red dog was here! Ah hah, told you!" However, I gathered that neither one of them felt that Aunt Jemima was a credible witness.

It wasn't until a week later when I got a comment on Facebook from Tina, with a link to a news article about the ice cream festival at Reading Terminal Market featuring...

Clifford the Big Red Dog. :)

I was telling them I'm not nuts :) but I am good for entertainment.

After the whole red dog ordeal, we did a little retail therapy and headed back to the convention by the way of the Phlash which took a little longer than we anticipated. Kim and Tina went to their rooms to get ready for their dinner and I jumped at the chance to spend some more time with Robyn. I'm so glad that I got a chance to spend some more time with her because she is just simply a delight to be around. When the dinner was about to start, it was time for me to bid adieu. It was sad to have to say goodbye since being around all of them was like a breath of fresh air.

A moment on the NYC Subway

Here I am, completely placing my faith on mass transportation to dump me approximately an hour and a half north in one piece, right into the Big Apple. A city that I have navigated at least a hundred times before. A city full of seemingly possessed cabbies complete with a touch screen GPS for our viewing pleasure. A city where you can get a massage where they whack you in the back with branches from a birch tree, takes in an over priced burlesque show and visit a Bedouin coffeehouse for a cup of the strongest java ever and a pipe full of fruity flavored Hookah all in the same night. You just cannot get this kind of action in the suburbs.

My cochlear implant just can't get this kind of stimulation in the suburbs either. New York is complete with never-ending supply of auditory stimulation from the hustle and bustle of eight million people with an influx of lord knows how many more. After two hours of being encapsulated in the good graces of the NJ Transit bus, they finally unleashed the fury of passengers in Port Authority of New York. I have been here before. The familiar smell of carbon dioxide and rotten eggs infiltrated my nostrils. I took a deep breath and sighed as I thought, "Ahh, good old New York hasn't changed it scent one bit." I hopped down the stairs, hugging the right side of the rail as I skillfully navigated myself towards the subway entrance. One needs skillful navigation to find the damn subway entrance but since I have graced just about every subway line from the 1 to the 7, the A to the G and all the others in between, I consider myself an intermediary expert in the art of understanding subway paths.

After swiping my MetroCard through the subway turnstile, I make my way through the underground sauna to catch the R train heading downtown. As I started my sweaty descent down the stairs to the subway platform, the irony of perfect timing brought a smile to my face as the R train comes rolling in with the hundreds of passengers beginning their evening commute home. I clutched my purse closely to my side and then with one swift step, I entered through the double doors of the train and scouted for an empty seat. With no such luck, I grabbed a hold the nearest pole and prepared my footing for jerky acceleration to the next stop.

Amidst the slight chatter, stench of massive BO and the metal rattling over every rail, I heard, "34th Street - Herald Square, Next stop - 28th Street"

I'm standing there perplexed, did I really just hear that? I turnaround to this young Asian girl when they started announcing the stops. She replies, "No speakie English." I apologized for bothering her. Then out of the corner of my eye, I felt this intense chemistry towards a very attractive, clean shaven man with piercing blue eyes in a grey suit with a pale blue shirt. I love a man in a suit. I figured what the hey, I tapped his shoulder and smiled coyly as I asked him when they started announcing the stops. He smiled revealing the most beautiful smile and chiseled jaw line. I decided I was in love right then and there. I had to ask him to repeat himself, not because I couldn't hear him but I was so smitten with him. He spoke with the most beautiful voice that I have ever heard, deep, smooth, and dreamy. He said, "They always have." Those three little words are forever etched in my memory. I managed to utter a thank you. My mind is running a thousand clever conversational icebreakers, and every single one of them was hindered by my timidness. He got off at the next stop. I watched my future husband walked away only to be embraced by the arms of another man. Figures, he's gay.

After I recovered from the heartbreak of my minute long unilateral love affair, I realized how astounded I was to be hearing all the stops being called out. I have never heard them! It answered so many questions of how my friends knew well ahead of time when to get off. I have cochlear implant moments every single day, but this moment was truly gratifying.

I get off Rectory Place and head towards Ground Zero to say a little prayer in memory of those that lost their lives on 9-11. After that, I walked back up towards Broadway with a little help from Google Maps application on my Blackberry Curve, I finally arrived at my destination ─ an hour and a half late. I rushed up the elevator and walked into the room. There was lovely Tina Childress standing there smiling. She asked me whether I was okay. I said, "I'm fine." I was more then fine. I was on a high about hearing the subway conductor announce the stops. There is something about the element of surprise that can really take you aback when you discover that you can hear something ─ that has always been there but not for you.

Here is others that are well on their way in having their own moments:

David went in this past Wednesday to have his other ear done. He is officially bilateral buddy! David is from Canada and they have universal health care, so bilateral recipients are rare. He really lucked out. However, because David had bacterial meningitis and the side effects can show up months or years later apparently, he had a thin membrane grow over a couple of electrodes of his first implant. Instead of 16, he is down to 11 which is fine because you only need 8 working electrodes (no matter the brand). With his past surgery, the surgeon was only able to get in 11 electrodes in due to ossification which is yet another side effect of bacterial meningitis. Please join me in wishing him nothing but the best for his upcoming activation! I love this mans attitude.

Deb, who is the owner of the CI-Clarion II Yahoo Group, had revision surgery this past Monday to replace a very old C1 implant with the latest Advanced Bionic HiRes90k implant. They had to go through the original incision, ouch! She came through like a real trooper after a six hour surgery! There weren't able to get all of the electrodes due to ossification, but she suspected that they wouldn't be able to going into the surgery. She will be activated August 4th (i think) and she will be back to being bilateral. :)

Shari has finally had her surgery this past Wednesday after being denied by United Healthcare whom is well known for denying CI surgeries. I'm glad to see they are coming around thanks to the persistence of Let Them Hear Foundation. Shari has Ushers Type 2 and a hearing loss. She actually had the hearing loss before she had Ushers. She seems to be coming along smoothly! I'm so happy for her!

Wendi had her simultaneous bilateral cochlear implant surgery this past Tuesday. She is only one of three people, Valerie being one, that I know that has opted to have them both done at the same time. Her surgery took only 2.5 HOURS for BOTH ears! That is it! It took 3 hours for one of mine! However, I am glad to report that she has no dizziness, a little bout of nauseousness and a little bit of taste disturbance. Otherwise, her recovery is a dream! I think I want her doctor next. :) Her activation is coming up on August 20th! I feel a special connection with her because our hearing loss history is so very similar that it is scary. She didn't lose her hearing altogether during a nose job surgery like I did but everything else lines up perfectly. I have a feeling she is going to do fantastic.

Karen had her surgery on Tuesday as well, just one ear though. Karen is a Type 1 Diabetic with an insulin pump. I was very happy from Laurie that she came through with flying colors. She was a little dizzy and nauseous but all of the electrodes are in! She is having a tough time recuperating but her darling husband is taking wonderful care of her! I'm not sure when her activation is. I'm so excited for her!

Amanda had her surgery on July 14th and her activation is August 12th. She is a sweet 14 year old girl that has been fighting for a cochlear implant for a very long time. She has never heard before in her life. She is going to find out just how noisy the world. Her stepmother is a former teacher of the deaf and does a wonderful job of taking videos of Amanda and captioning them. I can't wait to see how she reacts!

Jen was supposed to have her surgery last week but they had to post pone it to August 1st which is next Friday! I am sure she will be glad to get it done and over with.

Its been pretty busy around here! Gosh! :)

Walk 4 Hearing Fundraiser

On October 18th of this year, I will be dusting my sneakers off to go walking 5k for the Garden State, Walk4Hearing sponsored by Hearing Loss Association of America, a non-profit corporation, whose mission is to open the world of communication to people with hearing loss through information, education, advocacy, and support. The Walk4Hearing purpose is to increase awareness about the causes and consequences of hearing loss and to raise funds to provide information and support for people with hearing loss. The Hearing Loss Association of America depends on generous volunteers to raise funds and awareness at each of our Walk4Hearing sites.

I am asking you to help support me in this important project by contributing generously. For information about this volunteer fundraiser and its programs, you can visit http://www.walk4hearing.org/ and to make a donation online, please visit my personal page.

It is faster and easier than ever to support this great cause by making your tax-deductible donation online using the link below. If you would prefer, you can send your contribution by mail, please shoot me an email that is located on the right hand side just under my activation video.

Come join us!

Kickoff Celebration

Sunday, September 7, 2008
2:00 PM to 4:00 PM
Montclair State University
University Hall - 7th Floor Conference Center
1 Normal Avenue
Montclair, New Jersey
(click for directions)

Garden State, Walk4Hearing event

Saturday, October 18th, 2008
Registration - 9:00am
Walk starts - 10:00am
Mercer County Park
West Windsor, NJ
(West Picnic Area
(click for directions)

Thank you!

Bluetooth Headset with your Cochlear Implant

Did you know that you use can a Bluetooth wireless headset with your cochlear implant? You know those little things that people commonly mistake cochlear implants for? A bunch of idiots even steal cochlear implants off children because they look so much like Bluetooth headsets and that goes to say a lot about the caliber of our thieves in the US.


Well, I never thought I could use that until the morning of June 12th at approximately 10:30 in the morning when I took the workshop, “Bluetooth and You” presented by the very lovely Tina Childress, who is an audiologist at Advanced Bionics. She is a late deafened bilateral cochlear implant recipient as well. It was already a standing room event when Laurie and I had arrived with people hanging out in the hallway, standing on their tippy toes and craning their necks to find out what is up with that sexy digital wireless protocol called Bluetooth. With sheer determination and our pearly white smiles, Laurie and I swiftly moved through the audience and positioned ourselves - flat against the wall of Carson Room #3.

But wait, what is Bluetooth? It is a way for electrical components to talk to one another − wirelessly. For example, let us take your standard run of the mill television remote control that used infrared technology, point that bad boy at the television, and change the channel. Heck, go crazy use any remote but providing that you have working batteries :) the channel should change demonstrating an example of how electrical components talk to one another wirelessly. Bluetooth is just another way for us to cut the cord, so to speak. Bluetooth has a limited range of around thirty feet. You can use Bluetooth to communicate with all sorts of devices including cell phones, hearing aids and headsets, earpieces, PCs and printers, cars, digital cameras and GPS’s. You can get the gist that it is getting popular. :) Back to the presentation...

Once the presentation got underway, I watched Tina as she slipped a wireless Bluetooth headset right next to her cochlear implant. If my eyes were any wider, I think they would have fallen out of my head because I was blown away that a Bluetooth headset, a device that any normal hearing person could use was snuggling right next to Tina’s cochlear implant. I walked into that workshop with over 24 years of conventional hearing aid experience that led me to think I could never use one a Bluetooth headset. That was then and this is now.

Now Tina, like myself, has an Advanced Bionic cochlear implant and they are the only one cochlear implant company that has a T-Mic microphone auxillary ear hook.This is not to be confused with T-Coil that is just a small wire that can pick up electromagnetic signals from a telephone, TV, microphone and FM systems. The T-Mic is an ear hook with a microphone at the end that is designed to be placed in front of the ear canal opening and it takes advantage of the natural curvature of the ear to collect sounds as you can see here.

With this T-Mic technology, I can pick up a phone and place it right over my ear, like everyone else and after 24 years of fiddling with T-Coil hearing aids, I was more than happy that I didn’t have to try to find that awkward T-Coil spot anymore. But, I couldn’t understand how it worked because most of the Bluetooth headsets I've seen are ear bud style meaning they go in the ear canal that look like this.
With the T-Mic, you can use the ear buds but since the sound is being driven into the ear itself and away from the T-Mic, you would hear it but not as clear because the sound is being pumped into an ear canal and that don't help because well, we can't hear that way :) To fully utilize the benefit of T-Mic, sound had to be directed right in front of it. I was determined to find out the trick to this whole Bluetooth headset/Cochlear Implant business. So I did what any inquisitive deaf technological geek would do, I cornered Tina :) who was more then happy to let me test drive her Bluetooth headset. Once I saw the style of the Bluetooth headset, I went “Ah-hah!” It was flat and then it all made sense to me.

After I listened to the weather from Tina’s Bluetooth headset, I was sold. I decided that once I got back to New Jersey that by the way has a $250 fine if you are caught talking on a cell phone without a hands-free device, I was going to get me one. After some comparison shopping, I picked up this little gem of a headset from Motorola, the H700 for $40 bucks (see picture below). If you take a look at the top right picture, you will see that it is flat so that it fits right over the T-Mic which is exactly what you want.
This is the kind of headset you want to get if you want to start looking like one of those corporate yuppies exhibiting symptoms of bipolar disorder while rushing to Starbucks for a venti low fat vanilla with nonfat whipped cream, two pumps of caramel, and one pump of vanilla at 145-degrees soy latte light with soy milk and a shot of cinnamon! I’m sure you’ve seen them. :)

Now since my entire body is in proportion, my ears are big just like my butt and it can handle something else hanging off my ears. However, I cannot wear my glasses along with my cochlear implant and blue tooth headset. It has to be one or the other, the glasses or the headset. If you got teeny tiny ears, then this might be a better alternative for you, for under a hundred $130 bucks, the Noizfree Beetle Bluetooth headset available with one or two earhooks. It works with all T-Coil equipped behind the ear hearing aids and cochlear implants. You can use these with Bluetooth enabled cellphones, computers and listening systems.
Or you just might want to cut the coils all together and go with the Artone Bluetooth neckloop that works with all T-Coil equipped hearing aids and cochlear implants as well as Bluetooth enabled cellphones and computers! The only downside is that it cost $165 bucks.
This particular neckloop will help people that have bilateral hearing aids or cochlear implants with T-Coil activated. They can just flip their devices to T-Coil and listen to a phone call or streaming music from their computer or Ipod.

You can use for more then just talking on the phone, if you have a MacBook, PC that comes with Bluetooth built in or a Bluetooth USB drive, you can pair your headset with your computer and listen to music or audiobooks. I was jamming to my Itunes playlist all weekend via my Motorola H700 Bluetooth headset. You know what else you can do? You can purchase a Bluetooth adapter for Ipods that will enable you to listen to music or an audiobook from your Ipod.

I bid you all good toothing.

Advanced Bionic settles with the FDA

I wanted to share with you all a copy of the press release from Advanced Bionic CEO Jeff Greiner that was posted on HearingJourney.com

Dear Patients and Professionals:

Today, Advanced Bionics agreed to settle a matter with the U.S. Food & Drug Administration (FDA), resulting from a decision we made in 2003. That decision concerned a determination that no formal FDA submission was needed when we added a new vendor (Vendor B, later terminated in March 2006) to our manufacturing operation. Four years later, in 2007, the FDA filed an administrative complaint against us stating the FDA's belief that a formal submission should have been filed. We responded to the Agency, pointing out that it had already approved both vendors when it approved the system.

While we do not agree with the FDA, we do believe that accepting its terms is in the best interest of our patients, our company and our need for a long standing relationship with the Agency. So, we have decided to settle the matter, with the company paying 1.1 million dollars and me, as CEO, paying 75 thousand dollars.

Over the years, we have increased our focus on the reliability of our entire implant system. At present, our internal device (Vendor A) has a 2 ½ year CSR of 99.1%, and our external product durability leads the industry. That being said, we expect that the quality of our products will only get better in the years to come.

As we move forward, we are stronger than at any point in our history: singularly focused on cochlear implants, well funded, possessing better leadership in key positions, and having a strategic plan built around patient care.

We very much look forward to continuing our partnership in this community. Please call me if you have any questions about these or other matters.

Very sincerely,

Jeff Greiner,
President and Co-CEO